Please read the following important information
You have been given this information
because you are being asked to:
- donate
a sample to the NSW Health Statewide Biobank, and
- give
permission for NSW Health to collect and link your health and personal
information (data) to the sample now and into the future.
You can find more
information in our Frequently Asked Questions at biobank.health.nsw.gov.au/participants.
We would like to ask you to donate a sample to support health and
medical research.
Researchers use human samples to
learn about illness and find better ways to help people with health problems.
Your donation will support research that may result in discoveries that
can change, improve and save the lives of others in the future.
If you choose to donate a sample, it will be used in research studies.
A sample could be any of the below
items:
- Blood
- Saliva
- Urine
- Stool/Poo
- Bone
- Breast
milk
Your sample will be stored safely in the NSW Health Statewide Biobank.
A biobank is a secure place for storing human samples.
Samples stored in the Biobank are
used for ethically approved health and medical research. They help researchers
find better ways to detect and treat illness and disease.
Like a bank,
samples donated for health and medical research are kept under tight security
and in carefully controlled conditions.
For more information, the COVID 19 Biobank – Participant Information sheet is available here
You can also watch this video about the COVID 19 Biobank
It is your choice to donate or not.
Choosing to donate a sample for health and medical research is
voluntary. You should talk to your doctor, family or friends before you decide.
Your decision will not affect your care or treatment in any way.
Donating a sample is not part of your
routine medical treatment or healthcare.
You can choose to stop taking part at any time.
If you choose to donate a sample, but
change your mind later, that is ok. The decision will not affect your medical
treatment or healthcare in any way.
If you choose to stop taking part,
the samples you donated would be removed from the biobank and safely destroyed.
Your health information, held in the biobank, will be deleted.
Some or all of your sample might have already been given to a researcher
and used for a study. They will be asked to destroy this sample.
If you choose to stop taking part, contact the NSW Health Statewide Biobank.
Email:
NSWPath-Research@health.nsw.gov.au
Ask as many questions as you like.
You can talk to:
- your
doctor
- your
nurse
- other
people in your healthcare team, or
- You can also contact the NSW
Health Statewide Biobank by emailing
NSWPath-Research@health.nsw.gov.au. They are in charge of safely storing samples and health and personal information (data) to support